When I was pregnant with Logan three different people in my lives, completely unrelated, recommended to me and bought me the book “Expecting Adam” by Martha Beck. Between those moments and the continued pressure to have an amnio, (because I was AMA -Advanced Maternal Age), I knew in my heart that life with Logan would be unexpected at best.
Logan was diagnosed with Type 1 Diabetes in 2006. Previous to that diagnosis he was diagnosed with PDD-NOS, (pervasive developmental disorder-not otherwise specified). I don’t want to get lost in the details of the diagnosis, but I can send you to this link to find out more about it, http://en.wikipedia.org/wiki/PDD-NOS
With the PDD-NOS diagnosis also came years of speech therapy, occupational therapy and physical therapy. We used both State and County programs up until he was the age of three when he would qualify for the Early Education program at our neighborhood school. We also incorporated other programs through local agencies that provided in-home therapy. As Logan continued to grow, and after his T1D diagnosis, he would be re-evaluated yearly by the school and by specialists at the Children’s Hospital. Around the age of six, we would find that he no longer met the criteria for the PDD-NOS diagnosis, though he would be left with a language disorder that he continues to be challenged by, though he thrives.
Logan is a creative, loving and a very sensitive child. He’s a character. He’s insightful, friends often commenting that he is an “old soul”. He loves to make movies, write comic strips, dance, have fun. One day he hopes to interview Dave Pilkey, his favorite author. He has a big heart. He also likes his alone time and he likes to do what he wants to do when he wants to do it. Just like any other nine year old. The one thing that sets him apart is that he is ‘on’ 24/7. He needs to be in constant awareness of his blood sugar, he needs insulin to live. He is constantly being poked and pricked- when he’s wake, when he’s asleep. I’m sure he would love to go a day without hearing us say “Logan, did you check your blood sugar?” or “Yes, you can eat that, but you need to check your blood sugar”.
So this is where it began. A slow dance with advocacy. For years I was at home, and continue to be. At the time of Logan’s birth I had not been involved with a career and soon slipped into the stay-at-home status. I never thought of myself as a SAHM (stay-at-home-mom), but there I was, surrendering to a path unknown.
After years of being on this path, at times moving quickly and with keen direction, other times wandering and maybe appearing lost to some, I realize that it was all leading me to this day. Nothing, big or small, ever happens without reason, and if I was paying attention, I will know what to do now.
So now is my time, it’s my time to advocate, and the timing is great, unexpected but great. It’s Logan’s time too. Logan continues to thrive and as a family we are becoming stronger advocates for him and for Type 1 Diabetes. There are many worthy causes to support, which I will continue to share with you on this blog, in hopes of giving you a more personal glimpse of children like Logan and the Mom’s that guide them. You are sure to be inspired.
I hope to never walk away from an opportunity to show my support for others. I hope you feel the same.
Please take a few minutes to learn more about T1D, and to think of Logan. I know that he will be thinking of you.